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Pulmonary Rehabilitation Patient Gains New Lease on Life

Tri-City Voice, December 5th, 2007

Transplant Patient Credits "Caring” Practitioners with Successful Recovery

Rachelle Harang, a 31-year resident of Fremont who turned 58 in October, didn’t hesitate when one of her fellow Better Breathers - members of a support group at Washington Hospital - asked her where she thought she would be without the lung transplant she received the day before Thanksgiving last year.

"I said: ‘Dead,’” Rachelle remembers. "I couldn’t walk very far without gasping. Two weeks ago, I visited townhouses and walked 57 stairs and wasn’t out of breath at all.”

When she first began pulmonary rehabilitation at Washington Hospital with the program’s coordinator, Margaret Chaika, RCP, Rachelle’s condition had made it impossible for her to walk more than five minutes walking on the treadmill during her rehab sessions.

Rachelle had been diagnosed with a rare genetic condition called neurofibromatosis (NF), part of a category of genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues, causing tumors to grow on nerves and produce other abnormalities such as skin changes and bone deformities. In Rachelle’s case, the condition attacked her lung tissue.

Five years ago, her left lung collapsed and she spent three weeks in the intensive care unit. After the collapse, she had to be on oxygen 24 hours a day, seven days a week, Rachelle says. Then after undergoing an unrelated procedure, Rachelle’s right lung collapsed.

"I just couldn’t do anything without being out of breath,” Rachelle says.

In part, what kept her going after her lungs collapsed, she says, was the care and support she received from Washington Hospital’s team of respiratory care professionals, Chaika and her treating physician, Dr. Jason Chu, a pulmonary disease specialist and medical director of Washington Hospital’s Respiratory Care and Pulmonary Rehabilitation Departments.

By the time Rachelle got the call for her transplant in 2006, she had known Chaika for years, having been through pulmonary rehabilitation twice at Washington Hospital.

"The transplant gave her a new lease on life,” according to Chaika. "Rachelle recently went to the transplant picnic and she had met people 10 and 12 years out of surgery. And when I called her a few days after the surgery she said ‘My hands aren’t blue (from lack of oxygen)!’ She had been so desensitized to being short of breath.”

Chaika calls Rachelle "her hero,” not only for being so compliant with her treatment, medications and rehab, but for her positive attitude. Rachelle is a talented seamstress, who Chaika has dubbed "Martha Stewart,” and also has served as a Washington Hospital Service League volunteer, donating her time to make blankets for babies in the hospital’s Special Care Nursery, greeting people as they enter the hospital and making copies and compiling worksheets for new patients.

"Whenever something hard comes up in life, I think of Rachelle,” Chaika says. "She’s a very strong person.”

Rachelle certainly returns the sentiment, crediting Margaret with being an instrumental part of her journey to recovery.

"Margaret is an angel,” she says. "All her patients just adore her because she is just so caring and so loving. Margaret follows her patients; she cares about people and that’s important. I always feel safe when I’m with her.”

The same goes for Dr. Chu, who Rachelle says "really cares” about his patients. She recalls telling both Chaika and Dr. Chu, "I’m going to beat this thing.”

She says having a terrific support network has made a huge impact on her successful treatment and recovery. She calls her husband, Tom, "her rock” and says the support from her fellow Better Breathers was indispensable.

Of Chaika, Rachelle says: "If it wasn’t for her, I don’t know if I’d be here. She was part of my strength in doing this, and Dr. Chu of course. Margaret was always there when I needed her. She drove me to the hospital ῜ how many people would do that?”

The Pulmonary Rehabilitation Department at Washington Hospital has been a critical factor in her successful recovery, according to Rachelle.

"It teaches you so much,” she says. "I think that’s why I did so well in my recovery because of everything Margaret has taught me.”

Rachelle and Tom have two children, Crissie, 31, and Tommy, 24. Losing her own mother at the age of 17, Rachelle says it means a lot to her to be there for her kids.

"I call this transplant my miracle; it’s just a miracle,” Rachelle says. "I’m here and it’s been eight months and five days and I’m feeling great. I can see my family and do things I couldn’t do. When I used to go places, I would have to think ‘How many oxygen tanks do I have to fill?’ ῜ now I just have to remember to bring my pills. Sometimes I even forget that I’m not on oxygen anymore.”

Breathe better

Washington Hospital’s Pulmonary Rehabilitation program helps patients with chronic lung disease return to daily life without the anxiety of struggling for breath during daily activities. Enrollment in the program requires a physician’s referral and preliminary breathing tests to measure the oxygen you breathe in and the carbon dioxide you breathe out.

To learn more about the Pulmonary Rehabilitation Department at Washington Hospital, call (510) 494-7025.

The Better Breathing for Life Club, a free support group at Washington Hospital, is for people with chronic lung conditions, such as chronic asthma, bronchitis, emphysema, chronic obstructive pulmonary disease (COPD), pulmonary fibrosis or other restricted lung disease. Family members and loved ones are welcome to attend.

To be added to the group’s mailing list, call (510) 494-7025. If you reach a recording, press "2” when prompted.

 

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